warriorkidrules

February 16, 2017

Lets Go 2017!

Hello kind followers of our journey!  First off, Happy New Year (yes I am a few months late) to all of you!  Usually I am so on top of everything but I am not going to lie, this past holiday season kicked my tush.  I attempted to write in November, but Thanksgiving was hectic, followed by a 2 week break from school, Chanukah and Christmas (WK and I celebrate both), New Years and now we are almost in March.  Deep breath. Lots of deep breaths for me lately. WK decided his New Years resolutions are: No nail biting Be independent with […]
September 19, 2016

Always Waiting For The Other Shoe To Drop

Here is the deal…..PANDAS Syndrome sucks. It sucks sucks sucks sucks sucks!  WK earned a trip to Disneyland for 3 days due to overcoming some behavioral issues we had been working on at home.  The treat was that he and I were going to stay at the Disneyland Hotel for 2 nights which we had never done before, so he was pretty stoked.  Everything has been pretty smooth for the last few months but I live in a world where daily I am always wondering when is the other shoe going to drop.  I mean CLEARLY “paradise island” can only […]
August 17, 2016

School starts: time for the no bullying conversation!

Hello!  And poof just like that Summer is over and we are all back to the grind.  Is it just me or did it seem like Summer flew by this year?  Well none the less, I hope you all had a fantastic Summer filled with lots of fun and laughs!  We had a busy busy Summer here.  Warrior Kid went to camp as you all know, followed by surf camp twice and then a long overdue trip to Maui.  We are wrapping up Summer with an overnight at the Disneyland Hotel as WK worked on improving specific behaviors the past […]
July 15, 2016

Yay for Summer Break….boo for the change in the daily routine!

Hi.  I feel like I crawled, slowly, very slowly over the finish line this past June when school ended.  Holy moly this past year kicked my butt.  As usual the Stud Warrior Kid handled all of his medical issues like a CHAMP (thank goodness), however Mama had a lot of ups and downs.  Anyone else count down the days until school ending and look forward to Summer Break and then realize “holy crap how do I deal with all of the changes in schedule?”  This year it seemed like the change in WK’s schedule was compounded by 100%.  Maybe it’s […]
June 6, 2016

All things Warrior Kid…..a BIG GIGANTIC update!

Hi There! It’s been a while since I have updated you all on what is going on with Warrior Kid so I figured one BIG update was due !  As you recall Warrior Kid hasn’t grown in over 18 months.  We think it is due to the steroids he was receiving every 3-4 weeks for his high dose monthly IVIG infusions.  Since we have moved to SCIG (sub Q) weekly lower dose infusions he doesn’t have side effects and therefore steroids aren’t needed to combat side effects since he doesn’t have any!  Super great for sure however because he had so […]
May 14, 2016

Please. Just. Stop. Using. The. Word. Retarded. K? Thanks.

Dear Everyone, It’s 2016.  Please.   Just STOP using the word “retarded.”  It’s hurtful.  It’s offensive.  It’s really not “PC” anyways.  And fyi should you know someone who truly has been diagnosed with retardation, I would say that you are being a bully to someone who cannot defend themselves against name calling. It is not socially acceptable folks.  It really isn’t.  It also makes my skin crawl when I hear people using the word “gay” to describe something that is not preferred.  For example “Dude that is so gay.”  Why?  Why is it that people feel it’s ok to use such hurtful […]
March 11, 2016

The Hamster Wheel Never Stops

You ever feel like you just run around all the time barely keeping your head above water?  Yea, me too.  Last year I came to the realization that my life is like that of a hamster on a hamster wheel running and running and running.  Sometimes the hamster will run super fast and sometimes the hamster will take a light stroll, but either way the wheel never stops spinning. Autism can go from being status quo to all the wheels falling off the bus within two minutes.  This week my hamster wheel has been spinning so fast that I feel like […]